OCDBE: Usher Syndrome – 100 Years of Discovery
Starting 10/27/2021 at 4:00 PM until 5:30 PM
Event Groups:
• State Support Team 6 - District Events

Usher syndrome was identified as a unique genetic syndrome more than 100 years ago. Researchers
have identified at least 10 genes that cause three subtypes. Yet, Usher syndrome is still under-
identified. Nancy O’Donnell will review the latest facts on Usher syndrome. Daniel Greggs will describe life as a husband, father, and professional living with Usher, and his role as the Ambassador in Ohio for the Usher Syndrome Coalition.

Educational considerations such as environment, communication, and practical accommodations will
also be addressed.

Guest Speakers:
Nancy O’Donnell – Ms. O’Donnell is the Director of Outreach for the Usher Syndrome Coalition. She
has worked with the Deafblind community for more than 40 years.

Dan Greggs – Dan Greggs has Usher syndrome 2a. When he was 3 years old he started wearing
hearing aids. Not until his teens did he realize that something was wrong with his eyes. As his vision
loss progressed, he officially became legally blind in his mid-30s. Although he does have some
physical disabilities, he has a successful career as a data analyst and looks forward to helping others
in their unique situations. When he is not working he enjoys spending time with his family,
especially playing with his three kids!

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